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KMID : 1137220050050020146
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Jounal of Korean Oncology Nursing
2005 Volume.5 No. 2 p.146 ~ p.158
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Experiences of Breast Cancer Women Undertaking Genetic Test
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Jun Myung-Hee
Choi Kyoung-Sook
Ahn Sei-Hyun
Gu Bo-Kyung
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Abstract
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Purpose: This study was to obtain a understanding of breast cancer women with high risk for hereditary cancer syndrome.
Method: A micro-ethnography was used, including participation observation, open-ended in-depth interviews.
Results: Two major arguments were derived. First, When Korean women at high risk to hereditary breast cancer make a decision about whether to take a genetic test, they are strongly motivated by a desire to preserve close kinship bonds and "family love" among their siblings, parents and children. Second, Even after genetic risk assessment and counseling services, Korean women at high-risk for developing a hereditary breast cancer who have been informed that they are mutation carriers, still hold onto previous beliefs about cancer causation. Their cancer prevention strategies are constructed according to their unchanged perceptions and beliefs about cancer causation.
Conclusion: More sensitive genetic counseling program needs to be developed. Referral programs and clinical services must be attentive to cultural values and beliefs otherwise cultural attitudes and practices toward genetic counseling will not change.
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KEYWORD
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Genetic counseling, Hereditary disease, Genetic screening, Breast cancer, Ethnography
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